Archive for the ‘movement disorders’ Category

Mirapex, Here a Vex

Saturday, August 21st, 2010

At my last checkup with my neurologist, he ran through the standard office visit litany of tests. I touched my nose, I puffed my cheeks, I walked to the end of the hall and turned and walked back.

When he turned his wrists and said, “Show me how you change a light bulb,” I smiled. My arms at my sides, I replied, “I ask my husband to do that.”

Though he didn’t laugh out loud (I did notice, however, perhaps a slight effort to remain his serious self), I still like him. I believe it’s important to have a good relationship with my doctors, where I can trust that they are not only listening, but truly hearing what I’m saying. No joke.

So during the appointment, when I mentioned that sleep (or lack thereof) ranked highest on my list of disruptive symptoms, he nodded. He asked a few questions. He took notes. After several more minutes of thought, he suggested I change from the three-a-day doses of Mirapex to the newly available once-daily, extended-release version. He gave me a coupon with the prescription to try it for thirty days.

I was pleasantly surprised and highly irritated.

The pleasant surprise: The extended release version leaves me with a more even sense of its effects, keeping rigidity at bay, reducing the side effects (particularly the stand-up-too-fast lightheaded sensation), and easing the long night’s journey into day. It gives me more ability to turn in bed, which allows for an occasional unfamiliar comfortable spell.

The irritation: My insurance company does not cover this medication. From what I can tell, their policy dictates that if the active ingredient(s) is the same in a new drug as in a less expensive (i.e., generic) brand, then they’ll cover only the latter.

Chemistry never ranked up there as a favorite subject of mine, but apparently the active ingredient in this once-daily pill is the same. The inclusion of the extended release aspect holds the key to making my day (and night) less challenging,  the ingredient that keeps me more active.

My doctor did the right thing. He prescribed a treatment he felt would be of benefit to his patient. Now it’s time for the insurance company to change the old, burnt-out  light bulb of their policy and step up their benefits.

Travels with Friends

Monday, July 26th, 2010

Here’s a travel log, complete with pics, from my recent bicycle trip to Switzerland.

http://www.limyoga.com/swiss_ride/

What’s not in the story is an expression of how grateful I am, not only to my captain and fellow stoker, but to my friends as well. You were there on the ride with me, particularly when the going got tough.

One place a friend showed up was after I blamed the wacky European cobblestone sidewalks for causing me to trip (though it was less than graceful, I did remain upright!).  I thought of Al. He’d have enjoyed the humor, as I noticed when I glanced down, that the path I was walking was paved. Hmmm, seems the PD had more to do with my vertical challenge than what was underfoot. Stumbles strikes again.

A few nights, when PD’s insomnia kept me from sleep, my husband stayed awake to keep me company. We shared stories of childhood where Julie and Suzanne featured prominently in the musings,even long after my husband dozed off.

And when the meds waned, I’d rest a while with my sketchbook, considering how Shelley might draw a scene. I actually rather enjoyed sitting with her until the rigidity eased.

I’ll think back on the Swiss Family Fred adventure and smile at the music of the cowbells and the dance that my taste buds did at every bakery. I’ll recall with pride the power my legs, PD or not,  contributed to the climbs, the 250 miles.  I’ll also remember that when the challenges of travel showed up, as they will with or without a chronic disease, I got by with a little help from my friends.

When Life Hands You Lemons . . .

Monday, January 25th, 2010

. . . don’t simply make lemonade.

Bake.

Baking is about creation. It’s about changing a list from flour to nuts into a dessert or breakfast treat. Whether it’s melding butter with chocolate or combining raspberries with ground almonds, the result enhances the finest flavors of each ingredient.

Yoga. like baking, is about transformation. This shift can happen in my body when I’m molding myself into into hero pose, or in my mind when I’m gazing at the flicker of a candle. The rigidity in my Parkinson’s muscles lets go of some tension, and the chatter – from fears of future symptoms to frustration with the current ones – empties from my thoughts.  This change, this shift, maintains the essence of who I am – my list of ingredients – drawing out what’s most flavorful.

Sometimes, a cool glass of lemonade can be refreshing.  But, making it is less a creation to me than a means of masking the taste with sugar and diluting it with water. I want to bring out the natural tang of the fruit. I want to create a lemon meringue pie, lemon squares, lemon poppyseed cake, lemon drop cookies.

To transform the lemons in your life-with-movement-disorders basket into a delight, bake something. And, of course, practice yoga.